Loma Linda University Children's Hospital

Was here when I was born. I had TEF a very serious birth condition. I had to have a y hour surgery and most the doctors didn't think I'd make it, but here I am today😊Loma Linda saved my life.

My son was in the Pediatric ICU and the entire staff was amazing! They took great care of my boy. The food was very good as well! There’s a Loma Linda Market within walking distance which makes wonderful smoothies.

I barely rate them one star. I’ve never experienced such disconnect with a surgeons orders and a hospitals staff nor experienced such unprofessional conduct from an anesthesiologist, to the lack of comfort or care from nurses to my daughter or me as a mother. I WILL never take my daughter to this hospital ever, EVER again! I never complain either but the 5 day he’ll experience my family had, compelled me to let other parents be for warned.

Our daughter was taken in to LLUCH in December 2014. For over 3 years, doctors ignored her labs, her images, and symptoms. They treated symptoms and failed to look for cause. They determined she had migraines which I disputed time and time again; however, once it's in the record, nobody looks beyond it.

Our daughter died from cancer. Cancer that was left untested, undiagnosed, untreated because "we don't expect to see it in children." That is it. Even though a doctor mentioned the cancer in January 2015 as a differential diagnosis. They still refused to test. I asked for the specific testing February 21, 2018 and was told it was unnecessary as her labs were normal. They were far from normal. Another doctor noted to do the tests that same week. They did one. And failed to read the results until March 1, 2018.

We were told 3 days before she passed away she may have cancer. We found out 6 weeks after she passed away it was a form of leukemia. I'm not sure how doctors who treat leukemia every day fail to recognize leukemia.

One doctor ran tests for Alpha-1 Antitrypsin Deficiency the week of February 20, 2018. She came running into PICU the morning our daughter passed away saying she failed to read the test results and didn't know if this was contributing to our daughter's condition.

Nobody at LLUCH, LLUMC, LLUHS will speak to us. We are referred to patient relations. Patient Relations refers us to Risk Management. Risk Management won't return our calls. But they are sure to send us letters asking for donations and nomination for our "favorite" doctor. They even sent us a reminder letter of our loss and how to grieve and get through the holidays without our daughter.

Due to the medical malpractice laws, despite having a clear case as told by attorneys, we cannot gain representation. This means LLUCH will get away with gross medical negligence resulting in the death of our daughter. Their doctor told us had she been tested and treated earlier she'd still be here with us.

#JordansStory #somedayshewillchangetheworld #medicalmalpractice #grossmedicalnegligence #noexcuse #micraprotectsdoctorsnotpatients

My daughter had surgery a little over a week ago. She had a mal rotation. Loma Linda surgery team took it very serious n reacted very quickly. They treated us very well there. And answered all my concerns. ♥ love this place!